Luke Pollard

Labour & Co-operative MP for Plymouth Sutton and Devonport

  • Home /
  • News / Luke Pollard MP pledges support to Alfie Dingley

Luke Pollard MP pledges support to Alfie Dingley

alfie.jpg

Luke Pollard MP has pledged support to 6 year old Alfie Dingley and his family in their quest to secure access to medical cannabis to alleviate Alfie’s very rare and severe epilepsy. 

Who is Alfie Dingley?

Alfie is one of nine boys in the world with a genetic condition which causes him to  suffer up to 150 life-threatening seizures per month, each one so severe he is rushed to hospital.

Why does he need medical cannabis?

The only treatment available in the UK is IV steroids which doctors say are causing him mental and physical harm that could result in premature death.

When Alfie was taken to Holland, medical cannabis cut his seizures down to just one or two less severe ones per month which could be controlled at home.

The body of evidence from across the world has been enough to persuade 29 US states and 12 EU member countries to legalise access to medical cannabis.

Speaking at the event, Alfie’s mother Hannah Deacon said:

“We have been so moved by the outpouring of support from people the length and breadth of Britain.  And we have been heartened by the support of MPs and members of the House of Lords from across party lines.  When we took Alfie to Holland we saw with our eyes that medical cannabis works for him, cutting his seizures down to just one or two less severe ones per month which could be controlled at home. Access to the oil meant Alfie had the quality of life he deserves, and we were able to be a normal family, not gripped by fear of the next life-threatening seizure. 

“The delay in securing the Home Office licence that Alfie needs is putting his life at risk. Since we returned from Holland last month he has already been hospitalised three times.   We’re very grateful to Luke Pollard for his support.”

Luke Pollard MP said:

“I have received countless letters and emails about Alfie from people in Plymouth. Alfie’s family have been huge pillars of strength for Alfie and I admire their courage and determination in fighting for access to the medication little Alfie needs. I pledged my support to Alfie’s mum to join their fight and I signed up to do what I can to bring focus on this issue and get Alfie the medication he needs. Ministers must pay attention to Alfie’s case and make sure that all options are considered to make sure Alfie has the best possible quality of life.”
 
“Alfie’s case is the latest in a long line of examples that have led to more calls for legislation to permit the medical use of cannabis, and I believe the Government should look carefully at the case for the use of cannabis or cannabis products as a medicine specifically.”

Reactions

Please check your e-mail for a link to activate your account.
commented 2018-04-06 10:48:45 +0100
The nub of this issue is that the govt argues ‘all medicines have to go through the established medicines authorisation process with the MHRA’. That means clinical trials costing millions. Even the basic fee for an application is over £100,000!

But you cannot regulate a plant-based medicine containing 500+ molecules in same way as a single molecule pharmaceutical product. That’s why in EVERY jurisdiction around the world where cannabis for medical use is legally available, a separate regulatory process has been established.

Until the govt gets to grips with this it will continue using this excuse.
Luke Pollard posted about Luke Pollard MP pledges support to Alfie Dingley on Luke Pollard's Facebook page 2018-04-05 16:01:58 +0100
I have pledged my support to Alfie Dingley's mum to join their fight
@LukePollard tweeted this page. 2018-04-05 16:01:53 +0100
I have pledged my support to Alfie Dingley's mum to join their fight http://www.lukepollard.org/luke_pollard_mp_pledges_support_to_alfie_dingley?recruiter_id=36630

The Labour Party will place cookies on your computer to help us make this website better.

Please read this to review the updates about which cookies we use and what information we collect on our site.

To find out more about these cookies, see our privacy notice. Use of this site confirms your acceptance of these cookies.